Men With Fibromyalgia
Men With Fibromyalgia

Men With Fibromyalgia (8)

Monday, 14 May 2012 17:08

Those Who Can't Do...

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I am a man—an outdoorsman—with fibromyalgia: I love backpacking, wilderness survival, biking, hunting, archery, farming, medieval re-enactment, forest management, building a home. Fibromyalgia has changed my life and identity; at the same time, it removed many of those things which I formerly used to do to relieve stress and anxiety. Over time I have learned to redefine myself and find new ways to feel useful and capable, but it has not been easy.

 

When I first started developing my condition, I did not know what it was. I just knew that I could not do what I used to and it frightened me. I mentioned to a doctor that I was taking 2400 mg of Ibuprofen a day to keep moving. She said, "Well, we all get older." "Ma'am, I'm twenty-two."

 

I skipped most of high school, started my own business after graduating college early, worked hard, played hard. Whenever I am not moving, ask me if I am okay. If anything, I was always pig-headed about pushing too hard. Finishing a five-mile run on a badly sprained ankle cost me most of a season of track—but it just did not hurt that bad. When I am asking for help, warning bells should ring; tell that to the doctors.

 

Once some of the more severe, visible effects started kicking in, it got easier. "My fingers are a bit swollen today," I would say, and the doctor's eyes would bug out. Then they would listen next time I said I was in pain. When they saw my blood pressure, normally a cool ninety over sixty, go up and stay up during a flare, it got a bit more attention. Then, it was tests, tests, and more tests.

 

After three years of testing, I got a diagnosis—if you could call it that. After eight years, maybe twenty doctors, a broken marriage, a broken business, and a lost home, I am still just fighting a holding action—slowly losing.

 

During a bad day in winter, I am bound to a wheelchair. On a good day in summer, I can sling hay bales with the best of them. In fact, I have to. I know that the more I do in the summer, the better I can cope with the winter; better muscle tone, cardiovascular fitness, higher morale, means farther to slide when the weather turns cold.

 

How do I keep from going crazy the rest of the time? I teach. Handcrafts, herbology, archery, survival skills. On bad days, I have people wheel me out to the archery range. I can't shoot, but I can watch their form, hear the subtle twang of a misfire, or see an underspined arrow fishtail as it leaves the bow. Some days I can shoot; other days I can help. I will tell you: it hurts. It hurts to watch while someone does something you love and cannot do. But it beats sitting at home and feeling sorry for yourself.

 

Many of the folks I have helped now shoot better than I will ever shoot again. I teach people crafts at every opportunity. My (new) wife and I give talks at the church on disaster preparation and on traditional skills. I write down everything I have learned. As my daughter gets older, I will teach her everything I can. When I was well, one person did the things that I did. Now that I am sick, I watch the skills multiply in others. My illness, in some slight, immeasurable way, has made one small corner of the world better.

 

It still hurts, but pain with a reason is so much better than pain with none. I sleep a bit better. My wife has to tell me to sit down a little less often. I am not frazzled and grumpy around my young daughter. I still wish I could just pick up a bow or an axe, but I know I make a difference, so I let it be… at least, until it gets a bit warmer.

Monday, 14 May 2012 17:07

It's a Guy Thing: Men with Fibromyalgia

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The relationship between fibromyalgia (FM) and gender has been a source of confusion and controversy among researchers and patients alike. Although FM is clearly more prevalent among women, the illness does afflict men as well.

 

Little research has been conducted that measures the prevalence of fibromyalgia, and estimates vary widely as to the proportion of male versus female patients. A 1999 epidemiology study conducted in London found a female to male ratio of roughly three to one. However, a 2001 review of the research literature in Current Rheumatology Reports stated the ratio was nine to one.

 

The gender gap goes beyond the numbers. Research has shown that FM symptoms differ between men and women. A recent study in the Journal of Rheumatology found that men with fibromyalgia seem to have fewer and milder symptoms than female patients, including number/severity of tender points, fatigue, and irritable bowel. However, an Israeli study that compared 40 men and 40 women with FM, matched by age and educational status, found that men reported more severe symptoms than women, in addition to decreased physical function and lower quality of life.

 

It's clear that more study is needed before the true nature and prevalence of fibromyalgia in men will be known.  But what's a guy with this illness to do in the meantime? It seems obvious that a man's experience with this disease would be quite different from that of a woman, if only because of the sheer numbers. One man with FM writes, "at times I do feel isolated being the only male in most support groups. I try to keep my sense of humor."

 

It's A Man's World?

A common debate within FM discussion forums and support groups is whether male sufferers have it better or worse than their female counterparts. On the one hand, men may have a more difficult time getting diagnosis or treatment since FM is generally perceived as a "woman's disease." Balancing this, perhaps, is the widely publicized gender bias in physician's attitudes toward their patients. A 1999 study in the New England Journal of Medicine found that women complaining of chest pain are less likely than men to receive important cardiac testing. Research has also shown that doctors perceive female patients as more likely to to make excessive demands on their time, which may be due to women's real tendency to voice more complaints and ask more questions than men do during a typical visit. The same study also found that women's complaints were judged more likely to be influenced by emotional factors.

 

Still, while the loss of function and quality of life imposed by FM is devastating to both men and women, males with this illness may face some additional burdens. Though gender roles are gradually changing somewhat, men have long been expected to "feed and protect the family." Societal roles and expectations strongly influence perceptions of success and self-worth. Many men may base their self-worth on their ability to work, their income potential, or their employment position. Once afflicted with fibromyalgia, men often can't meet these expectations and must suffer even greater feelings of failure.

 

Furthermore, males are socialized from a young age not to reveal or express their feelings and fears. The well-known fact that men are less likely to seek counseling or attend support groups suggests that men may experience even greater isolation. One young man with fibromyalgia explains, "I think it is important for people to know how hard it is for men with FM. Growing up you are taught to be tough, have a job, support a wife and two kids which is very hard to try to achieve. It is much more difficult for a man to maintain a relationship or explain his condition to friends."

 

Reaching Out Across Gender Lines

There is support out there for men and women alike. Online support venues may help in bridging the gender gap, because the relative anonymity of online communication means that an individual's gender is not so readily apparent. In addition, men can more easily connect with other men like them, since they have access to the global community rather than just their local support group, where encountering another male may be less likely.

 

Most men seem to find that even though online support networks may consist predominantly of women, these groups are extremely welcoming to members of both genders. Says one male patient, "All the women online readily accept me and are amazed that I am 'brave' enough to openly speak with them and not be intimidated by being the only male."

 

The society we live in tends to associate self-worth with an individual's ability to be "productive." As FM sufferers, our old expectations simply become unrealistic. Continuing to judge ourselves and our lives by unrealistic standards can only lead to discouragement and hopelessness. As with any major life challenge, we need to find new measures of meaning and unique definitions of success. Managing our own and others' expectations is a challenge that everyone, with or without fibromyalgia, must face.

 

Tips for Men (and women, too)

For all individuals who suffer from fibromyalgia, but especially males, the following guidelines are helpful in managing the impact of chronic illness:

  1. Do not attempt to push yourself beyond your present physical capacities. Accept and work within your present realm of abilities.
  2. Set immediate, realistic, and obtainable short-term goals which can be achieved on a daily basis.
  3. Talk, talk, talk. Express your feelings and fears--allow others to assist you in seeing yourself from a more realistic perspective.
  4. Attend area support group meetings. Try to connect with other individuals that share your background or unique concerns.
  5. Throw out "old lessons" about expectations that one must meet in order to be of value. Write "new lessons" for your life.
  6. Realize that change does not necessarily produce negative results or consequences. Look for the gains which can be achieved by and through the changes.
  7. Accept that you may not be as powerless as you feel or fear. While you may not have power over your own physical abilities now, or how others may perceive you, you always have absolute power and control over how you view yourself.

Adapted from material compiled by Dr. Dennis G. Cowan, M.D.

Monday, 14 May 2012 17:05

Not Lazy--Not Crazy

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I'm a 44-year-old man, first diagnosed with fibromyalgia in 1988. While fibromyalgia presents a litany of problems for all of us affected, as a man, the worst thing about it for me has been the criticisms I've received for "spending so much time in bed." 

 

"What's wrong with him?" has been a chant for years. 

 

"Fibromyalgia," they say, "what's that?" 

 

"Are there any tests?" 

 

"Surely it's all in his head!" 

 

Heretofore, for me, fibromyalgia has not been accepted as an excuse to be a bedridden man.

 

To all the nay-sayers, especially those in the medical community, I'd just like to say that at 44 years old, bedridden is not what I want to be! There are entirely too many wonderful activities I'd like to participate in. More often than not, I can't get out of bed—I just can't. I'm either in too much pain, or totally exhausted! So, outside of essential activities that I must drag myself to, there are few other activities I can avail myself of. In many ways, this is not living—not living at all. 

 

After suffering seemingly alone for the last 18 years, it appears that things are changing fast. Just the fact that a National Fibromyalgia Association now exists seems to have given pause to the nay-sayers. Having the Fibromyalgia AWARE magazine on the coffee table seems to have provided further pause. I'm confident that through NFA's efforts, the exact nature of fibromyalgia will soon be revealed—the marker(s) will be found, and we suffers will be vindicated. I look forward to being up and around again, operating at the same frenetic pace that was once my hallmark.

 

Fibromyalgia symptoms are the antithesis of so many masculine attributes, strength, stamina, etc. Without strength and stamina, it's been my experience that I'm seen of less than a  man. I look forward to recapturing my strength and stamina again. Through NFA's great efforts, I'm confident that I will. In addition to all the wonderful things it's doing, NFA will, at the end of the day, help me once again be seen as a respectable man, not lazy, not crazy—just a man with a real illness who wants to get better.

Monday, 14 May 2012 17:04

Living Life with Hope

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I wanted to have this article done a week ago. This is life with fibromyalgia: always running late because of a flare up in pain that puts you back a day, a week, even a month. This week I had a wedding to do, which was supposed to be a fun thing, but when you are standing in front of the bride and groom in pain from your legs to your eyebrows--well, it’s not much fun.

 

 

I was diagnosed with fibromyalgia almost a year ago, but have had symptoms of this coming on for about five years. It runs in my family, I am almost certain of it. When I look back and see the physical and emotional stressors that my grandparents had—and great-grandparents, for that matter—I can see why two grandfathers became alcoholics to handle the constant pain.

 

It’s not a simple pain either, as if you had stubbed your toe or bumped your head. It's pain that comes and goes without reason or without a way to predict when it will happen. Some days I exercise and the next day I feel nothing but fantastic amounts of energy and the emotional lift that a good swim or a ride on the mountain bike might give. But, like last week, working in the yard, running around with the kiddos (four of them), playing "Simon Says" and "Red Light, Green Light," and I wake up on Friday feeling as though I have been beat up in the night with a bar of soap in a pillow case.

 

I am a stay-at-home father 85 percent of the time. The part-time job I carry is as a pastor of a small rural church here in Weldon Valley in Colorado. Being a stay-at-home person has definitely been a blessing, as when the pain gets bad, I am in a place that is safe and where I can jump into the whirl-pool bath I put in my bathroom to get loosened up. I have a laptop computer to write sermons on and do lots of instant messaging and emails to my congregants—it is a good way to not only modernize this country church, but also has opened up a lot of good dialogue with people afraid to talk to me face-to-face about their problems.

 

Problems are a daily thing when it comes to handling the pain in my joints and muscles. The problems of making sure my painkiller pills are on track and I haven't used too many in one day, the problems of emotional turmoil as I am trying to understand why this happened to me (did I cause this somehow?), the problems of trying to make these issues understandable for those who have unrealistic expectations of me even as I deal with my chronic illness (that is the biggest problem I face outside my home).

 

For the most part, I am functional except for the nagging stiffness and my limbs falling asleep. The bigger pain I deal with during my waking hours is the pain of the emotional turmoil. why did this happen to me when I was doing "the Lord’s will?" Too many times I think I have spiritualized my sickness, thinking that just because I was a pastor somehow I was immune to a chronic illness. I would say to myself, "I have a mission here, starting a church for Pete's sake. Why would this happen to me and take away some of my ability to lead and work?" Woe, woe, woe is me. All this is just whining, however, and it doesn't do any good. I am not any more or less lucky than anyone else. The rain falls on the good and the bad. Truth to be told, once I became ill the people of my church took more than half my responsibilities upon themselves and have made the church even better. Time to look at the glass as half full, not half empty, when you see such things happen in your life.

 

Not everyone sees it that way though. For some people, my illness is a fake. Since I cannot explain it in detail, they act as though it is a cop-out for me to eventually claim disability. Those people I stay away from if possible; they are toxic because they think about themselves and their own needs first, without attempting to understand anyone else's position or problems. If I were on my deathbed, there's at least one or two people I know who would be saying that was fake too. I inform them the best I can about what is going on, for as much as they need to know, but for those with expectations that are too high for me—distancing myself is about the only thing I can do right now. Too much stress leads to fibromyalgia flare-ups for me—panicky feelings lead right into pain running through my body and a terrible feeling in the back of my throat and arms. I don't need that.

 

So what are my successes? I still work at my jobs. My kids are well taken care of, although I leave the house a mess sometimes. There are those days when bed rest is needed. I garden for peace and pleasure (and a little profit when I sell small trees I raise). There’s nothing like watching a ginkgo biloba leaf out and then seeing the eyes of the buyers when I give that tree to them.

 

I also love my yoga. I have a 28-day regimen I stick to when I can. I wake up sometimes at night, restless, and do yoga to relax my stiffness and soreness. I try never to take pain killers at night, therefore yoga is my salvation.

 

I can also take care of my children without much concern over my abilities. They know I have this disorder, and they take great delight in helping me out around the house and also just with lots of hugs. With four of them (ages 8, 7, 4, and 2), you can imagine how busy our home is. Their energy and imaginations keep me going as I watch them play and join them sometimes too! Forgetting you are 39 years old and bringing out the child in you is one of the most relaxing endeavors you can accomplish with this disease. It makes you say to yourself, "This can be dealt with. You will not conquer my spirit."

 

And, of course, there is the spiritual element. All this has brought me closer to my Maker instead of farther away. I have learned it's okay to be angry with the Creator, to question why things happen, to make myself open and able to receive those answers I don't wish to hear. That is not easy, but without my pain and this sometimes seemingly intolerable illness, I would not be where I am spiritually today. The Apostle Paul, with his "thorn in his side," spoke in the New Testament about how he was kept humble through this. I have my own thorn; therefore I am somehow in the same class as Paul. I should be so honored to be in such good company.

 

As a man, I want to control what happens to me. I am the bread-winner and builder, the soldier and peacemaker, the embodiment of machismo and strength—or so I thought at one time. Now I realize that through what I face and suffer, I am able to talk to others with the same or similar problems and even as iron sharpens iron—so am I able to learn how to deal with what I suffer, and also how to help those who are just beginning to go down this path. Fibromyalgia is a pain, literally, but it is not the end by any means. Right now I hear the birds outside my window—and the room is awfully quiet. The birds remind me it's time to get to work and change the water on the lawn, and also find out what the 2- and 4-year-olds are doing—silence usually means trouble!

 

For those of you who are suffering as I once did, and as I do once in a while, don't be silent—silence means trouble! Speak up and speak out. Find someone to talk to—even me—so that your journey is full of life and hope and not so much pain and loneliness.

Monday, 14 May 2012 17:00

The Evolving FM Experience

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Health Log:

60 year old male. Health good; alert; physically in good shape for his age. Nothing organically wrong, all tests negative. Complains a lot!

 

That was eight years ago. There is no point in detailing the aggravation of being told by your family physician that there is nothing wrong with you and if you hurt, take a hot bath, do more exercise and get involved with multiple activities so that you don’t dwell on the natural changes that happen to everyone as they age.

 

I used to joke with my massage therapists that they had a body on their table that was suffering from a bad case of rigor mortis. I would suggest that they might prefer me to be on a gurney rather than a comfortable massage table.

 

At the end of an hour they would invariably comment that they had now had their workout for the week. My muscles were hard and tight, my flexibility approached that of a corpse. And I was having pains so deep in the muscle tissue that it took all their energy to relax the outer layers of muscle so that they could get at the trigger points and apply either acupressure, ice, heat, ultrasound, electro-stimulation etc.

 

Although my pain was relieved, I knew full well that in a few days, everything would spring back into a state of spasm—no matter what activity, or lack of activity.

 

If I did anything fairly energetic, then for days afterwards I would be unable to function and simply want to sleep—as if drugged.

 

My eyes burned due to dry eye syndrome, so any work on the computer was punctuated by frequent enforced intervals to attend to my eyes and my body.

 

I could have drowned my sorrows in food, chocolate and alcohol, but for the fact that irritable bowl syndrome (IBS) and acid reflux disease (GERD) ruled that out.

 

Was I depressed? Absolutely not!

 

But my doctor put me onto antidepressants! And the impotence that this induced made me even more depressed and also woozy!

 

The situation was becoming intolerable, especially when my doctor smirked: "Oh, you are here again, Sid. What is it this time?" And when I was about to leave after the appointment, he tried to assure me that there was nothing wrong and I am perfectly healthy—but he could not feel my pain!

 

My ‘dry eye’ doctor referred me to my rheumatologist. That changed my life! After a number of blood tests and X-rays, I tentatively waited in his exam room while he studied the lab results and the x-rays. I prepared myself to deal with the next snide remark that was sure to come.

 

Instead, he was deeply thoughtful and his exam particularly thorough and then he outlined a series of office visits and the protocol I was to follow. He told me what I might expect and what could not be done about my condition. I asked him to repeat the diagnosis so that I knew I had heard it right and I asked for assurance that he would accept me as his patient. The relief was indescribable; it was not "in my head"; I was not delusional!

 

Very patiently and always with sincere concern, Dr. Kemple and Vesna Giurgief, P.A. (pain specialist), helped me understand the condition, assisted me to deal with it and empowered me with all manner of coping mechanisms as we worked together to design and titrate my specific treatment program.

 

Three years later I now feel alive again. My energy level has improved and my outlook on life is positive. Each day is filled with a sense of joy and gratitude.

 

My advise to other fibromyalgics:

  • Change your doctor until you find one who treats you as an individual and not an epidemiological statistic.
  • You will be able to adjust to your new reality if you do not treat this as a war. You are not fighting anything!
  • Being angry and ranting and raving about it is like throwing rocks at fog. Whatever you do will not make the fog go away. Instead learn new techniques to move and see through the fog. Learn to be where you are and remember, "For things to change, you must change!"
  • Work cooperatively with your medical team to change yourself, your way of living, your attitude towards life, time and the enveloping dynamic.
  • Become part of this, not apart from this.
  • Dissolve all perceived artificial boundaries and constraints; join hands, head and heart with all that makes your world.

You will change and then things will change!

 

Monday, 14 May 2012 16:59

The Paradox Of Pain: A Male Perspective

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As young boys growing up, we are taught by society not to cry when we scrape our knee. If we bruised a knee when playing football, we learned how to hold the sensation of pain on the inside. In England you’ll hear the expression, "Grit and bear it," and this is just what we did. So it can certainly knock a man’s ego when you cannot "grit and bear it."

 

When the cycle of pain goes on every day, week, month, year, it makes the "If I just ignore it, it will go away" approach seem ridiculous. It is tempting for a man who has fibromyalgia to see himself as inadequate or not manly anymore. I am going to put it to you that we are the iron men of men, the strongest of the strong, and I’m going to tell you why.

 

If we think about the toughest men in society, we might think of those in the mafia, or boxers, or the Navy SEALs. These men know how to inflict pain on others and endure large amounts of pain themselves. And yet, yet, there is a reprieve from their pain. A boxer has to last the fight and can then recuperate over the next days or weeks. A mobster may inflict a great deal of pain on someone, but this is usually going to happen in an intense period of minutes or perhaps hours. It is only perhaps the likes of a Navy SEAL who will come close to our league by having to potentially endure the torture of months or even years of pain. 

 

This being said, men with fibromyalgia are keeping good company. The difference for many of us is that our pains have been unrelenting, unyielding, uncompromising, ruthless in their execution, and for many of us a continual daily companion. And yet through it all, we manage to keep on smiling, keep getting back up, and refusing to give up this dream called life.

 

It is also worth noting that we get no sympathy from those around us because most people have no concept of what we are living with. I have found that I will get more sympathy from having a common cold than from fibromyalgia. Remember, people can relate to a cold—they can see a cold—but not the roaring tiger within us.

 

Of course, we are all working towards relieving our symptoms sooner rather than later—only a true man could do that—and with new knowledge comes new hope.

 

Only a man of iron strength could look pain in the eye each day and say, "You will never conquer me, for I am stronger."

 

How many men could deal with the numerous challenges of this complex condition? Perhaps only a certain type of man—a real man!

Monday, 14 May 2012 16:58

Men and Fibromyalgia

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Michael J. Fox became a "one of a kind" type of guy because he stepped forward, and let the world know about his disease. He gained national attention, and received national compassion and sympathy because of his plight with disease. I applaud him for his courage to "take a stand" and bring awareness to a disease, and to get attention for Parkinson's and much needed research. But, he is a celebrity, and his job was fairly easy.

 

What about Jim? Jim has fibromyalgia. He is not famous, and not many people will know anything about the disease he struggles with on a day-to-day basis. Jim lives in constant pain, he fears losing his wife because he is no longer capable of "being a man." He fears his grandchildren fading away from him, because "Grandpa" can't do "Grandpa" things any more. His friends don't call anymore because he has been "sick" one time too many.

 

What about Chuck? Chuck has fibromyalgia. He is not famous, and not many people will know of his disease either. Chuck's wife has already left him. His doctors still think it is all in his head, and there is really nothing wrong with him. He suffered from a car accident, and as a result he ended up with a diagnosis of fibromyalgia. The "invisible disease." One of his doctors treats him like he is nothing more than a drug addict just wanting drugs. Yes, he does want drugs. He wants treatment for his chronic pain.

 

What about Dave? Dave has fibromyalgia too. Dave is one of those that people will never know he has fibromyalgia. Dave has trouble showing his pain, his feelings, and is afraid people will shun him because of his disease. He is afraid to let anyone know he is suffering. Dave is known to do things, to go overboard, and end up in bed for days, just to keep anyone from knowing he is in pain. Dave has a lot of anger, a lot of frustration, and a lot of pain.

 

What about Joe? Joe suffers from fibromyalgia. Joe is a trooper when it comes to his pain and disease. He never gives up, encourages others with the disease, and rarely displays a bad attitude. He has his good days, and his bad days, but is ever hopeful for a cure some day. He has a supportive spouse, and a close-knit family. He did however, lose his job due to the disease, and had to go on disability. Joe is active in his local support group, and is known to help others cope with the disease. Joe is the kind of person you would like to know even if you didn't have fibromyalgia.

 

What about Greg? Greg has fibromyalgia. His is so severe he is confined to a wheelchair, and rarely gets out of his home. He has very little quality life, and not much to look forward to anymore, just the chronic pain. He suffers now from panic attacks, from irritable bowel syndrome, chronic sleeping disorders, shortness of breath, and several other "cousins" of fibromyalgia. He depends on others to help him on a day-to-day basis. Most of his friends are on the internet, and talk to him from afar, only when he feels up to getting on the computer and chatting.

 

What about Bill? Bill has fibromyalgia. Bill is still trying to work and hold down a full time job. He is starting to have to call in sick more and more. His boss is putting more and more pressure on him to be on time, and not to call in sick. He really can't help it, as there are days when he just cannot work. His medical bills are mounting, his financial condition is falling, and his family is starting to suffer from his illness. His doctor says he needs to reduce the amount of stress, as stress makes fibromyalgia worse. On his way out of the doctors’ office, the receptionist tells him they need a payment. This is a vicious circle. His medication bills are growing daily, along with other financial burdens.

 

You have just been introduced to a few of the men who frequent the menwithfibro.com website. The names have been changed, but they are all there. There isn't much on the Internet about men dealing with fibromyalgia, and that was the reason http://www.menwithfibro.com/ began. It began as a central point for men to come, to share, to learn, and to grow with the disease. Traditionally, more women have the disease than men, but the number of men with fibromyalgia is growing steadily. Part of the reason more men are not diagnosed is that men are just plain stubborn sometimes. And when it comes to going to the doctor, they are VERY stubborn as a general rule.

 

Men are raised to believe that men don’t cry. They are told to "shake it off" and to "take it like a man." Men fix things, men are the hunters, men are supposed to be the breadwinners, the head of the household. Men are inundated with these concepts from a very early age. Showing pain is showing weakness to so many men. Fibromyalgia does not shake off. Fibromyalgia does not give up. It does not stop for anyone, or anything.

Hopefully the http://www.menwithfibro.com/  website will be stomping grounds for some of the men with fibro, and for women as well. The site is not just for men, but devoted primarily to men and how they choose to deal with fibromyalgia. Anyone is welcome to the site.

 

The site has a forum and the response there has been well received. Dr. Michael McNett from the Paragon Clinic in Chicago hosts one of the forums and discusses fibromyalgia openly. He has been a great asset and has been well received by all of the people coming to the sites. There is also a chat program available on the site.

 

The response to the website has been very good. Many say it is something that has been needed for a long time. Maybe it will be like a "Cheers" on the internet a stopping place for men and women to grow as individuals, and share one with another. That is our goal and hope.

Monday, 14 May 2012 16:56

Men With Fibromyalgia

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Men and Fibromyalgia

Michael J. Fox became a "one of a kind" type of guy because he stepped forward, and let the world know...[view]

 

Those Who Can't Do...

I am a man—an outdoorsman—with fibromyalgia: I love backpacking, wilderness survival, biking, hunting...[view]

 

The Paradox of Pain: A Male Perspective

As young boys growing up, we are taught by society not to cry when we scrape our knee. If we bruised a knee...[view]

 

Living Life with Hope

I wanted to have this article done a week ago. This is life with fibromyalgia: always running late because of a...[view]

 

Not Lazy—Not Crazy

I'm a 44-year-old man, first diagnosed with fibromyalgia in 1988. While fibromyalgia presents a litany of...[view]

 

The Evolving Fibromyalgia Experience

Health Log: 60 year old male. Health good; alert; physically in good shape for his age. Nothing organically...[view]

 

It's a Guy Thing: Men with Fibromyalgia

The relationship between Fibromyalgia (FM) and gender has been a source of confusion and controversy...[view]

 
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